What treatment are you on for PBC?
What current or past treatments have you been on for PBC? And what has your treatment experience been like?
I am on urso but my dr was saying there is a new drug out. Needing info on new drug and is it usually higher or lower than urso. I have had great results with urso. Have been on it for over 10 years and I am told that I am still in stage 2
The sound of there being a new drug is definitely encouraging, especially since there aren’t many options. It almost makes you feel like there is more work being done behind the scenes to help manage it which is a great thing since PBC isn’t commonly known. But it also sounds like URSO has been promising to you and keeping things stable! That’s a great thing! But I am curious, did your doctor sound like they were wanting you to try the new drug, or were they just mentioning that there are newer options available now? -Latoya (Team Member)
Ursodiol (250 mg., two in AM, one before bed
What’s been your experience with taking Ursodiol? Is it helping any? - Latoya (Team Member)
I was diagnosed in the fall of 2024 and was put on URSO immediately. After 12 months I was not responding as well as we hoped, so i was topped up with OCA. I live in Canada, so it is still on the market. I have had not issues with it at all. I am missing my bloodwork this month but will have it done again in May. Fingers crossed.
Hi,
! Thank you for sharing your experience with us! Working your way through a diagnosis and figuring out which treatment will work best for you is truly a journey. I can imagine it was a little disappointing not getting the response you hoped for after a year, but it’s reassuring that there was a next step available that has actually been going well for you so that's a good thing! I’ll be hoping May brings some encouraging results for you. If you're comfortable, we'd love to get an update from you then. Wishing you all the best, Latoya (Team Member)
