What treatment are you on for PBC?
What current or past treatments have you been on for PBC? And what has your treatment experience been like?
Back in 2000 I tried Urso but couldn’t tolerate it so took nothing.
Ursodiol is such a common first-line treatment for PBC, so it’s helpful to hear from people who have had a different experience with it. Have you found anything else over the years that has helped you manage your symptoms? -Latoya (Team Member)
I've been on ursodiol 500 mg twice a day for 35 years and never had a problem. Just recently I've been having pain under my breast but the doctor said its a muscle. I also have a sliding hernia which is giving me problems. I have been experiencing alot of fatigue. I shouldn't complain I do tolerate it.
I think my doctor was the first to say that this will be called cholingistes in years to come and he was right. Unfortunately he retired about 10 years ago.That’s a long time to be on the same treatment without experiencing any problems! So I can imagine how frustrating it can be when new symptoms arise and you're trying to figure out where that's stemming from. And to add the fatigue on top of it all, that's another beast that's hard to fight also. Has your doctor suggested any new strategies or treatments since these new symptoms started showing up? -Latoya (Team Member)
Ursodiol
How has Ursodiol been working for you? -Latoya (Team Member)
ursodiol and Livdelzi
How has that been working for you so far? Have you noticed any improvement? -Latoya (Team Member)
