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What is Brain Fog Like for You With PBC?

Confusion, forgetfulness, trouble concentrating — these symptoms don't always get talked about, but they matter just as much as the physical ones. Have you noticed confusion or changes in your memory since your diagnosis? Share your experience below.

  1. Forgetting words are the worst. I’m 66 and I’m sure people think I have dementia. It’s embarrassing and I totally hate this disease. My family think I’m crazy bc I forget a lot especially when I’m really tired.

    1. when I’m stressed or really tired.

    2. I’m sorry you have to deal with that. I hope you’re able to get the rest you need and give yourself some grace on those days when things feel a little harder. -Latoya (Team Member)

  2. Terrible feel like in a dream sometimes

    1. I hear you. Does it happen more at certain times of the day, or is it something you feel pretty consistently? -Latoya (Team Member)

  3. I can't focus,search for words,forgetfulness

    1. Thanks for sharing! I think forgetfulness and trouble focusing can be just as frustrating as the physical symptoms sometimes. Have you found anything that helps you stay focused or remember things when you’re having one of those days? -Latoya (Team Member)

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