Did you have any symptoms of PBC before your diagnosis?
PBC may show symptoms prior to diagnosis, but many people also experience few or no symptoms. What symptoms, if any, did you experience?
I went for a routine physical and my liver enzymes were high. The doctor did not address the elevated enzymes but focused on my BP of 144/82. The BP was high for me but not abnormal according to the new guidelines. Anyway it took 6 months and me switching to a naturapath to get the correct diagnosis of PBC. My enzymes have been cut in half and are almost normal. My alk phos and total biliary are normal. I've only been getting treatment since March. I do have mild fatigue and itching.
It’s encouraging to hear that your numbers improved after only a few months of treatment! Hopefully, the fatigue and itching ease up for you, too. Did you feel relieved once you finally got a diagnosis? -Latoya (Team Member)
Tiredness and no energy were two of the symptoms I had. I couldn’t figure out why I felt this way because I was always one of the first ones to say yes to an adventure. Always ready to go no matter what. I was in a senior group where we would go on tours or lunch and even shows…but I had to resign from my senior group because I had no energy.
Thanks so much for sharing with us. I bet stepping away from your senior group wasn’t an easy decision. Were you surprised to learn that the tiredness you were experiencing was connected to PBC? -Latoya (Team Member)
Yes, I already had symptoms before I was diagnosed. I was very tired all the time, had a lot of brainfog (forgot almost everything) and the itch was already horrible
I’m glad you’ve found creative outlets that bring you some happiness, even when you’re not feeling your best. I hope those little creative moments continue to bring you comfort and happiness! -Latoya (Team Member) Thank you so much! I wish you all the best!
Fatigue
How are you managing the fatigue now? -Latoya (Team Member)
