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Did you have any symptoms of PBC before your diagnosis?

PBC may show symptoms prior to diagnosis, but many people also experience few or no symptoms. What symptoms, if any, did you experience?

  1. fatigue, itching and muscle pain

  2. I had all of my symptoms before I was diagnosed, itching, fatigue (I thought I was lazy), brain fog, and no medical professional would listen to me. I kept asking them why we are not doing anything about all of my liver blood work being so high.

    1. , Yes I feel much more confident in my care now! Thank you!!

    2. I’m glad things finally feel more solid and supportive for you. It makes such a difference when you feel like your concerns are actually being taken seriously! -Latoya (Team Member)

  3. For me it was itching palm of my hands, sole of my feet, face and scalp and fatigue.

    1. That sounds really uncomfortable. How were you managing all of that before you knew it was PBC? -Latoya (Team Member)

  4. Yes, I had symptoms for 15 years before before a allergy doctor found the problem. ^6 doctors over 15 years said my bilirubin counts were high, but the didn't run any other test.

    1. I take ursodiol 500 '2x's a day. Ox bile 500. Testing of stomach, and colonosity. Misspelled it. Diet, vit. and, iron , staying active

    2. It sounds like you’re covering all the bases! It shows how much care and attention you’re putting into managing your PBC. Keep it up and I hope everything works out for you. -Latoya (Team Member)

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