Did you have any symptoms of PBC before your diagnosis?
PBC may show symptoms prior to diagnosis, but many people also experience few or no symptoms. What symptoms, if any, did you experience?
I did have symptoms.... but initially I went to the ER because of swelling and ankles/feet/belly, itching, spider angiomas. After all of the testing/4 days in the hospital (it was stage 3 cirrhosis)...the Hepatologist had me come in for my follow-up visit. That's when he brought up the PBC. They are SOOO similar in their symptoms it's crazy. He somehow could tell the Cirrhosis was 1st present separately from the PBC. For me, it seems some days are a double whammy.!!! (I've never had a biopsy or fibroscan though) So now it's progressed & the chronic fatigue does me in A LOT!! Playing around with all of the 12 meds, having constant labs/US tests, foggy/lightheadedness, dry mouth, losing hair. Those are the major ones. I never took naps unless I had the flu...now I take 1 or 2 little ones per day. Crazy!! I've gone through the transplant evaluations and I made the transplant list even though my numbers aren't horrible so I 'm happy I at least am on the back burner if anything turns south really quickly. God knows... I'll only get older & weaker.
