The Itch with PBC
What does the PBC itch feel like for you? Have you found anything that helps manage it?
I itched before diagnosis. I first went to the dermatologist because I thought I had an allergy. The itch is hot and continuous when I have it. I don't always have it now that I know it is a symptom. Strange because it was bad I wanted to scream.
Thank you for your kind words and support. I just came back from the beach and still no itching or fatigue. I do have dry mouth though. I keep water by my bed at night and mints. Yes, I am really interested in my next testing since I know this is a reality. At the moment, I am blessed in the progress I am sure is to come. in changes. I pray everyone has some peace with their diagnosis. It is so hard to fathom something like this. I’m glad you were able to enjoy some beach time and come back feeling good! The dry mouth sounds annoying, but at least you’ve got your water and mints ready to go. Taking things one step at a time and focusing on the progress ahead is definitely a good way to keep moving forward. Please keep us updated on how things go. You'll be in our thoughts, Latoya (Team Member)
I have always had itchy skin and can and have itches to raw skin.
It was only after my diagnosis that it made more sense.
I find an antihistamine helps and I use very gentle oat based baby cleansing and moisturising products they really help sooth, moisturising extra thick and well has also really reduced my itch experience.
But sometimes it’s just a case of roughing it out and cool showed as often as possible.The itching is one of those symptoms that can really affect quality of life, so I’m glad you’ve found some things that help. How long did it take you to figure out which products worked best for your skin? -Latoya (Team Member)
Omg I remember when I started itching in 2000 before I was diagnosed with PBC/AIH, I itched my feet to the point of severe bleeding. At that time they were going to do the transplant then but changed their mind. I know what you all are going through and I wish I had the miracle cure for you all 💕
Thanks so much,
! Sometimes knowing someone else understands what you’re feeling can bring a little comfort. I hope you're doing well currently and things have become more manageable for you over the years! Kindly, Latoya (Team Member)
Add baking soda to your bath water.
That's interesting. Have you noticed how long the relief from the baking soda bath usually lasts for you? -Latoya (Team Member)
