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What stage of PBC were you diagnosed with?

What stage of PBC were you initially diagnosed with, and has your condition progressed since then? Share your experience.

  1. Thank you. I am planning to do just that during my next appointment in a few weeks, after I have had more bloodwork done.

    1. That's great! I hope your appointment is productive and that you come away with a clearer understanding of where things stand. Feel free to keep us updated! -Latoya (Team Member)

  2. I do not know what stage I was diagnosed with. My doctor said he suspected I had likely been living with the condition for years, then next visit said my fibroscan scores showed no fat in my liver and only mild scarring. I don't know what to make of this.

    1. I can understand why that feels unclear. It might be worth asking for a straightforward explanation of where things stand right now. You shouldn't have to walk away from appointments still trying to piece everything together. Have you tried asking for more insight? -Latoya (Team Member)

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