What stage of PBC were you diagnosed with?
What stage of PBC were you initially diagnosed with, and has your condition progressed since then? Share your experience.
In March, while asymptomatic, I was diagnosed at stage 3. Dr requested a biopsy which confirmed diagnosis, ruled out AH, and put on UDCA. A month later, my numbers were better. I go to my check up in August.
I’m glad you were able to get a diagnosis and start treatment quickly. But how did you feel when you first received the diagnosis, especially since you weren’t having any symptoms? I can imagine it was shocking to hear at first. But it’s great to hear your numbers improved after starting UDCA. I hope your August checkup continues to show positive progress. Keep us updated! Kindly, (Team Member)
Thank you. I am planning to do just that during my next appointment in a few weeks, after I have had more bloodwork done.
That's great! I hope your appointment is productive and that you come away with a clearer understanding of where things stand. Feel free to keep us updated! -Latoya (Team Member)
I do not know what stage I was diagnosed with. My doctor said he suspected I had likely been living with the condition for years, then next visit said my fibroscan scores showed no fat in my liver and only mild scarring. I don't know what to make of this.
I can understand why that feels unclear. It might be worth asking for a straightforward explanation of where things stand right now. You shouldn't have to walk away from appointments still trying to piece everything together. Have you tried asking for more insight? -Latoya (Team Member)
