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What stage of PBC were you diagnosed with?

What stage of PBC were you initially diagnosed with, and has your condition progressed since then? Share your experience.

  1. I’m was stage 2 when they did my biopsy, but my hematologist , thinks that might get better after I take the meds for a while.

    1. How has it been working for you? Any improvement? -Latoya (Team Member)

    2. my numbers has been great. But I’ve not had another fibroscan or biopsy

  2. Stage 3

    1. Thanks for sharing, . How has stage 3 PBC affected your day to day life? -Latoya (Team Member)

  3. In March, while asymptomatic, I was diagnosed at stage 3. Dr requested a biopsy which confirmed diagnosis, ruled out AH, and put on UDCA. A month later, my numbers were better. I go to my check up in August.

    1. I’m glad you were able to get a diagnosis and start treatment quickly. But how did you feel when you first received the diagnosis, especially since you weren’t having any symptoms? I can imagine it was shocking to hear at first. But it’s great to hear your numbers improved after starting UDCA. I hope your August checkup continues to show positive progress. Keep us updated! Kindly, (Team Member)

  4. Thank you. I am planning to do just that during my next appointment in a few weeks, after I have had more bloodwork done.

    1. That's great! I hope your appointment is productive and that you come away with a clearer understanding of where things stand. Feel free to keep us updated! -Latoya (Team Member)

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