I'm a Better Clinician Because I Have PBC. Here's What I Want Other Healthcare Providers to KnowBeing a clinician and a patient living with a rare disease, I think I have a unique perspective regarding healthcare. I know...reactionscomments
Living with Asymptomatic PBC, Waiting for the Other Shoe to DropWhen I was diagnosed with PBC over 20 years ago, my doctor tried to calm me by explaining that PBC progresses very...reactionscomments
Join the Conversation: PBC FatigueDealing with fatigue with PBC can feel like a constant hurdle. This deep exhaustion can impact our daily lives, energy levels, and...reactionscomments
Too Sick For Clinical Trials, But Not Sick Enough For a Liver TransplantIn 2001 I was 27 and began suffering from fatigue. I attributed it to working full-time and raising a 2-year-old. I made...reactions3comments
What Helps Me With the PBC ItchManaging the PBC itch was a challenge at first for me, because this symptom was present prior to me being diagnosed. During...reactionscomments
Itching: an Unbearable Symptom of PBCOne of the most unbearable symptoms that can come with having primary biliary cholangitis (PBC) is pruritus, or severe itching. The profound...reactionscomments
Tips for Treating the "Itch" (Pruritus) With PBCFor many individuals living with primary biliary cholangitis (PBC), the itch — medically known as pruritus — is more than just a...reactions2comments
Real Talk: The Realities of Primary Biliary CholangitisA PBC diagnosis changes your life in ways you can’t always put into words. In this three-part series, Danielle Alstat and Lisa...reactionscomments
A Man Living with PBCBack in 2004 my general practitioner was reviewing my recent blood work and noted that my levels of alkaline phosphatase (ALP) were...reactionscomments
Join the Conversation: What Do You Wish Others Knew About PBC?Living with PBC often means navigating "invisible" symptoms, like profound fatigue and unrelenting itch, that others cannot see. You may also face...reactionscomments
The Itch With PBCOne of the most frustrating aspects of dealing with primary biliary cholangitis for me has been the itch, or as it is...reactions1comment
The Link Between Sjögren’s Syndrome and PBCPrimary biliary cholangitis (PBC) is an autoimmune condition where the body mistakenly attacks the bile ducts in the liver. PBC can put...reactionscomments
My Diagnosis Journey to PBCWhen I was in my late 20s, I started experiencing a lot of back pain. I felt very stiff all the time...reactionscomments
The Crushing Weight of Fatigue With PBCOne of the biggest challenges of PBC isn’t just the medical diagnosis; it’s the invisible symptoms that the rest of the world...reactions6comments
Join the Conversation: What It’s Really Like Living with PBC SymptomsWhether you are newly diagnosed or have been living with primary biliary cholangitis (PBC) for years, managing symptoms can be an uphill...reactionscomments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like primary biliary cholangitis often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and...reactionscomments
My Liver Biopsy ExperienceLeading up to my diagnosis of primary biliary cholangitis (PBC), my gastroenterologist wanted me to have a liver biopsy. Liver biopsies are...reactionscomments
Navigating Stigma and Misconceptions About PBCMy name is Jackeline Candelario. I am 49 years old, and my journey with primary biliary cholangitis (PBC) started officially on May...reactionscomments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with primary biliary cholangitis often have...reactionscomments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical...reactionscomments
