Looking Fine Does Not Mean I Feel Fine: What Others Don't SeeI’ve been experiencing more fatigue and brain fog since my 2022 diagnosis of primary biliary cholangitis (PBC). As these symptoms have increased...reactionscomments
Living with PBC and Other Diseases: A Never-Ending StruggleBeing diagnosed with primary biliary cholangitis (PBC) is certainly daunting enough. But when you must live with several other diseases simultaneously, it...reactions1comment
Join the Conversation: What Do You Wish Others Knew About PBC?Living with PBC often means navigating "invisible" symptoms, like profound fatigue and unrelenting itch, that others cannot see. You may also face...reactionscomments
Diet and Lifestyle: Living with PBCLifestyle and diet can play a significant role in dealing with primary biliary cholangitis (PBC). This is what I've learned about it...reactions2comments
When Your Immune System Crashes the PartyWhen I wasn't looking, primary biliary cholangitis (PBC) and autoimmune hepatitis showed up and made themselves at home. I learned to live...reactionscomments
It's Okay To Ask For Help With Primary Biliary CholangitisI am from the generation of strong independent kids. If I wanted expensive jeans, I had to work for it. I had...reactionscomments
PBC Treatment: Difficult Side Effects and Other ChallengesFollowing my diagnosis of primary biliary cholangitis (PBC), my gastroenterologist immediately started me on Ursodiol at a daily dose of 1,200 mg...reactionscomments
Managing My Energy With PBC FatigueLiving with primary biliary cholangitis (PBC) means my energy has a budget, and sadly, I am not the billionaire in this situation...reactionscomments
Managing Brain Fog and Memory Problems with PBCWhen you look up the definition of brain fog on Merriam-Webster, it is defined as a typically temporary state marked by an...reactionscomments
Join the Conversation: PBC FatigueDealing with fatigue with PBC can feel like a constant hurdle. This deep exhaustion can impact our daily lives, energy levels, and...reactions1comment
Living with PBC: “You’re the Healthiest Looking Sick Person I Know”When a friend commented, "You're the healthiest-looking sick person I know," it occurred to me that many people have no idea how...reactions2comments
The Crushing Weight of Fatigue With PBCOne of the biggest challenges of PBC isn’t just the medical diagnosis; it’s the invisible symptoms that the rest of the world...reactions6comments
My Time as a PBC Patient Representative for the FDAIn September of 2024, I served as the PBC Patient Representative for the United States Food and Drug Administration. The FDA was...reactionscomments
Learning How to Say NoLiving with a rare chronic condition like primary biliary cholangitis (PBC) required me to do a complete re-evaluation of how I spend...reactionscomments
PBC and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Tips for Treating the "Itch" (Pruritus) With PBCFor many individuals living with primary biliary cholangitis (PBC), the itch — medically known as pruritus — is more than just a...reactions2comments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactionscomments
Living Loud With an Invisible Illness Like PBC: Never a Dull MomentLiving with primary biliary cholangitis (PBC) can feel like having a very dramatic roommate inside my body. I can look fine –...reactionscomments
How Hepatic Encephalopathy Causes Confusion and Memory Loss in PBCI was diagnosed with PBC in 2021, around the same time my Mom died from COVID. I was settling my mom's estate...reactionscomments
How to Manage Mental Health Issues After a PBC DiagnosisWe are told that it is important to take care of our mental health. But in this crazy world where our attention...reactions2comments
