I'm a Better Clinician Because I Have PBC. Here's What I Want Other Healthcare Providers to KnowBeing a clinician and a patient living with a rare disease, I think I have a unique perspective regarding healthcare. I know...
What Helps Me With the PBC ItchManaging the PBC itch was a challenge at first for me, because this symptom was present prior to me being diagnosed. During...reactionscomments
Too Sick For Clinical Trials, But Not Sick Enough For a Liver TransplantIn 2001 I was 27 and began suffering from fatigue. I attributed it to working full-time and raising a 2-year-old. I made...reactions3comments
Featured forum Welcome! Please Introduce Yourself.Welcome to our community! We’d love to learn a little about what has brought you here. ...reactions28replies
Featured story Delays to My DiagnosisIn about 2010, I began seeing my primary care doctor, complaining that I was exhausted. She lectured me on too much international...reactions3comments