What are your most frustrating symptoms of PBC?
PBC can cause symptoms like fatigue and itching that are difficult to manage. What are your most frustrating symptoms, and how do they affect you?
I must have all the symptoms I swear of fatigue.
I have the itching, I have the forgetting what I was saying or there's a word there but I just can't think of it yet, the feeling of tiredness and just don't want to do anything. I don't know if getting cranky quick has anything to do with it, but I can get cranky really quick. It don't take much but I admit it when I'm a b****.Having that combination of feeling exhausted, dealing with the itching, and then struggling to find the words can really wear you down. So the crankiness is basically a given and is just a tag-along for the ride. What have you tried to manage it all? -Latoya (Team Member)
Extreme fatigue. Luckily I have not yet experienced the itching.
I am an older woman and have always been very active. Sometimes I just can't fight the fatigue and my older kids just can't understand when I say I've reached my limit. I don't know how to make them understand. I've given them both a booklet to read so they can see. I know it’s tough. I think sometimes our kids get so used to seeing us as the ones who always show up and keep going that it can be hard for them to adjust when things change. Maybe they haven’t fully accepted it yet, and they struggle to really understand it, too. But I hope they take the time to really listen and read what you’ve given them. No matter what, your effort to explain and be open is still making a difference. Give it time. It can, and it will change soon. Be encouraged, Latoya (Team Member)
Being tired all the time and itching
Being tired and uncomfortable at the same time sounds like it can be so draining. How long have you been dealing with those symptoms? -Latoya (Team Member)
I have fatigue but is it because i am 75 yrs old or is fatigue from PBC more profound fatique
That's a really good question,
! It could be difficult to know whether the fatigue is from getting older, PBC, or a combination of both. What does a fatigued day look like for you? Is it more physical exhaustion, mental fatigue, or both? -Latoya (Team Member)
