Have you experienced changes to your menstrual cycle?
Hi there, I've recently been diagnosed with PBC so am still learning about the condition and what symptoms others experience, other than itching and fatigue. I've been experiencing changes to my menstrual cycle but my consultant has advised there is no link to PBC and hormones that would cause changes. I've requested blood tests and am awaiting results but I've seen info online that suggests PBC can cause cycle irregularities. Just wanted to see if anyone else has experienced this or something similar?
Hello Latoya, thank you so much for looking into this and for sharing your update. It will be interesting to see how that research progresses. I've had hormone tests done and they are apparently of no concern, but I know something isn't right. It's difficult when you know your body and you're trying to convince someone that you're speaking truth, but doctors can only go off what they have in front of them so if there is no evidence there then I understand. I hope so too, it would be helpful to understand other women's experiences to see if they've had similar issues. I'll keep an eye on the post 🙂 thank you again!
Ugh, that’s such a battle, knowing your own body but not always feeling heard when the tests don’t show what you’re experiencing. I’m hoping we see some much needed progress in this area as more research is done. Fingers crossed someone chimes in with an experience that feels familiar. Hang in there! Kindly, Latoya (Team Member)
Welcome to the community! There can be a lot to take in after a new diagnosis, so it makes sense that you’re trying to connect the dots with changes you’ve noticed. I did a little more digging into this because I thought your question was interesting. There actually is some research looking at menstrual changes in women with PBC, including irregular or heavier periods, although it doesn’t establish that PBC itself is the cause. So I can definitely understand why you’re wondering about the connection, especially since you’ve noticed a change. I truly hope some of the women here can share what they’ve experienced. It would be really interesting to hear whether others have noticed changes in their cycles too. All the best, Latoya (Team Member)
