It's Okay To Ask For Help With Primary Biliary CholangitisI am from the generation of strong independent kids. If I wanted expensive jeans, I had to work for it. I had...reactionscomments
PBC Treatment: Difficult Side Effects and Other ChallengesFollowing my diagnosis of primary biliary cholangitis (PBC), my gastroenterologist immediately started me on Ursodiol at a daily dose of 1,200 mg...reactionscomments
Managing My Energy With PBC FatigueLiving with primary biliary cholangitis (PBC) means my energy has a budget, and sadly, I am not the billionaire in this situation...reactionscomments
Managing Brain Fog and Memory Problems with PBCWhen you look up the definition of brain fog on Merriam-Webster, it is defined as a typically temporary state marked by an...reactionscomments
Join the Conversation: PBC FatigueDealing with fatigue with PBC can feel like a constant hurdle. This deep exhaustion can impact our daily lives, energy levels, and...reactions1comment
Living with PBC: “You’re the Healthiest Looking Sick Person I Know”When a friend commented, "You're the healthiest-looking sick person I know," it occurred to me that many people have no idea how...reactionscomments
The Crushing Weight of Fatigue With PBCOne of the biggest challenges of PBC isn’t just the medical diagnosis; it’s the invisible symptoms that the rest of the world...reactions6comments
My Time as a PBC Patient Representative for the FDAIn September of 2024, I served as the PBC Patient Representative for the United States Food and Drug Administration. The FDA was...reactionscomments
Learning How to Say NoLiving with a rare chronic condition like primary biliary cholangitis (PBC) required me to do a complete re-evaluation of how I spend...reactionscomments
PBC and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Tips for Treating the "Itch" (Pruritus) With PBCFor many individuals living with primary biliary cholangitis (PBC), the itch — medically known as pruritus — is more than just a...reactions2comments
Diet and Lifestyle: Living with PBCLifestyle and diet can play a significant role in dealing with primary biliary cholangitis (PBC). This is what I've learned about it...reactions2comments
Living Loud With an Invisible Illness Like PBC: Never a Dull MomentLiving with primary biliary cholangitis (PBC) can feel like having a very dramatic roommate inside my body. I can look fine –...reactionscomments
How Hepatic Encephalopathy Causes Confusion and Memory Loss in PBCI was diagnosed with PBC in 2021, around the same time my Mom died from COVID. I was settling my mom's estate...reactionscomments
How to Manage Mental Health Issues After a PBC DiagnosisWe are told that it is important to take care of our mental health. But in this crazy world where our attention...reactions2comments
My Evolving Treatment Path With PBCI was diagnosed with primary biliary cholangitis (PBC) in 2004 at age 51. I had an initial alkaline phosphatase (ALP) in the...reactionscomments
I'm a Better Clinician Because I Have PBC. Here's What I Want Other Healthcare Providers to KnowBeing a clinician and a patient living with a rare disease, I think I have a unique perspective regarding healthcare. I know...reactionscomments
Living with Asymptomatic PBC, Waiting for the Other Shoe to DropWhen I was diagnosed with PBC over 20 years ago, my doctor tried to calm me by explaining that PBC progresses very...reactions4comments
Too Sick For Clinical Trials, But Not Sick Enough For a Liver TransplantIn 2001 I was 27 and began suffering from fatigue. I attributed it to working full-time and raising a 2-year-old. I made...reactions3comments
What Helps Me With the PBC ItchManaging the PBC itch was a challenge at first for me, because this symptom was present prior to me being diagnosed. During...reactionscomments
