I want to know what the symptoms are all of them that you know of
The itch drives me crazy. I have medicine for it and I take it three times a day. It definitely helps a lot but I don't know why my head will still continue to itch. No I did not have lice.
I want to know what other symptoms are involved with PBC because I don't know and I can't really say anything to my doctor if I don't know what's going on or if I don't know if they're connected with PBC.
I always figure it's something else that's going on so that's why I think it's important to know the symptoms so you can talk about them to someone.
been to EVERY Specialists that I can think of. 5 GI Dr's ( including Cleveland Clinic !), and Dermatologist, brain scans, MRI's, CT'S with and without contrast, 4 Orthopedic Specialists, Neurologist, and a few trips by ambulance because of severe pain. I SO FEEL your PAIN! Haven't been diagnosed yet but made appointment w/ my Dr. Ive got EVERY symptom but feel NOBODY'S connecting the dots! Im SO frustrated! CONSTANTLY in pain, severe most days, so fatigued and CONSTANTLY ITCHING!
I think it’s really great that you want to learn as much as you can about PBC. Being able to recognize which symptoms may be connected can make a big difference when you’re talking with your doctor and trying to explain what’s been going on. The itching is definitely a big one that the majority of people with PBC experience. I want to share with you an article that gives more information on other PBC symptoms. You can access it here: https://primarybiliarycholangitis.net/symptoms. Have you started noticing any other symptoms besides the itching and fatigue that you’re unsure about? Feel free to let us know if you have any questions! Kindly, -Latoya (Team Member)
