Do you have other autoimmune conditions, in addition to PBC?
PBC can increase the risk of developing other autoimmune conditions, such as Sjögren’s, thyroid disease, and more. Do you live with other conditions in addition to PBC? How does living with them affect you?
Not much. I'm trying to get over a virus right now that has completely wiped me out for 6 weeks. I get ravenously hungry and am exhausted most of the time. I'm getting brain fog and confusion. I have no idea which diseases are helping.
I'm so sorry the last six weeks have been really rough for you. Have you been able to check in with your doctor about the ongoing fatigue and brain fog? I hope this virus finally starts to let up soon and that you’re able to get some of your energy back soon. Take care, Latoya (Team Member)
Limited Scleroderma, SICCA, and fibromyalgia
I was diagnosed with Limited Scleroderma in January 2021, and PBC in January 2022. I had to have a liver transplant on November 4, 2024, because my body did not respond to the medications for PBC. That's a lot to go through in just a few years, and I'm sure it wasn't the path you expected. How have things been going for you since your transplant? -Latoya (Team Member)
Fibromyalgia
How long have you been living with fibromyalgia? -Latoya (Team Member)
I was diagnosed with Stage 3 PBC and Mesenteric Panniculitis in March. I found out I have Hashimotos about 10 years ago. I also suddenly developed high blood pressure last year. Hashis caused me to gain 100 pounds, have joint pain, cold intolerance, extreme fatigue, insomnia and migraine headaches. Since starting a GLP-1, about 7 months ago, I'm down 57 pounds and my symptoms have improved so much! My TSH is normal all the time now. I don't really have any physical symptoms of PBC yet, except maybe fatigue; but my doctor told me he thinks being on the GLP-1 may have kept my liver from getting worse.
It’s really encouraging to hear you’ve found something that’s made such a noticeable difference for you! GLP-1s have definitely become really popular lately, especially with how many people are seeing improvements not just with weight but also with other related symptoms and conditions. Did your doctor recommend starting the GLP-1 for you? -Latoya (Team Member)
