Did you have any symptoms of PBC before your diagnosis?
PBC may show symptoms prior to diagnosis, but many people also experience few or no symptoms. What symptoms, if any, did you experience?
The last 4 years my blood work has shown my liver enzymes were really elevated. Fatigue has really hit me hard in the last year and getting worse. I was just diagnosed last week with PBC. After doing research I now understand why I'm exhausted so much. Going to talk to my liver doctor Monday.
I can only imagine how exhausting and frustrating that must have been, especially dealing with worsening fatigue for so long. And now you finally have some answers, even though getting a diagnosis like that can feel heavy too. I hope your appointment Monday brings you some reassurance and a good care plan moving forward. Be gentle with yourself and if you're open to it we'd love to hear an update on how your upcoming appointment goes. Best wishes, Latoya (Team Member)
fatigue, itching and muscle pain
I had all of my symptoms before I was diagnosed, itching, fatigue (I thought I was lazy), brain fog, and no medical professional would listen to me. I kept asking them why we are not doing anything about all of my liver blood work being so high.
, Yes I feel much more confident in my care now! Thank you!! I’m glad things finally feel more solid and supportive for you. It makes such a difference when you feel like your concerns are actually being taken seriously! -Latoya (Team Member)
For me it was itching palm of my hands, sole of my feet, face and scalp and fatigue.
That sounds really uncomfortable. How were you managing all of that before you knew it was PBC? -Latoya (Team Member)
