Did you have any symptoms of PBC before your diagnosis?
PBC may show symptoms prior to diagnosis, but many people also experience few or no symptoms. What symptoms, if any, did you experience?
Fatigue
How are you managing the fatigue now? -Latoya (Team Member)
None My blood work indicated a problem.
It must have been surprising to get that diagnosis when you weren’t feeling any different. But I’m glad your blood work was able to catch it. How has everything been since then? Has it been a big adjustment for you? -Latoya (Team Member) What exactly did your blood show? I feel like my SPECIALISTS are just not looking in the right area. Please help so I can guide them. Been to atleast 7 different specialists. For Orthopedics, several MRI'S and CT's, a dermatologist, a 4 GI Dr.'s AND CLEVELAND CLINIC! I feel they're diagnosing me with EVERYTHING, but NOT THE RIGHT THING. I would appreciate any guidance you could give me
The last 4 years my blood work has shown my liver enzymes were really elevated. Fatigue has really hit me hard in the last year and getting worse. I was just diagnosed last week with PBC. After doing research I now understand why I'm exhausted so much. Going to talk to my liver doctor Monday.
I can only imagine how exhausting and frustrating that must have been, especially dealing with worsening fatigue for so long. And now you finally have some answers, even though getting a diagnosis like that can feel heavy too. I hope your appointment Monday brings you some reassurance and a good care plan moving forward. Be gentle with yourself and if you're open to it we'd love to hear an update on how your upcoming appointment goes. Best wishes, Latoya (Team Member)
fatigue, itching and muscle pain
